The Hunter Syndrome Foundation is a U.S. 501(c)3 non-profit corporation (IRS Tax ID#46-4296623) with a mission to fund research, support families, and raise awareness of this rare disease. The Foundation was founded in 2013 by parents with children affected by Hunter Syndrome.
Hunter Syndrome or Mucopolysaccharidosis Type II (MPS II) is a rare genetic disorder that slowly destroys the body’s cells. This is a rare condition affecting 1 in 150,000 males. There is currently no cure, and the disease is progressive and life-limiting.
My heart has forever been touched by Danny, who has Hunter’s Syndrome and is one of the bravest, sweetest boys I know. His mom, Carolyn, is so amazing and intelligent, and is the epitome of strength and unconditional love.
December 15, 2013 at 8:12 pm
My heart has forever been touched by Danny, who has Hunter’s Syndrome and is one of the bravest, sweetest boys I know. His mom, Carolyn, is so amazing and intelligent, and is the epitome of strength and unconditional love.