The Hunter Syndrome Foundation aims to fund and find a cure for Hunter Syndrome.  Hunter Syndrome or Mucopolysaccharidosis Type II (MPS II) is a rare genetic disorder that slowly destroys the body’s cells.  This is a rare condition affecting 1 in 150,000 males. There is currently no cure, and the disease is progressive and life-limiting.
The Hunter Syndrome Foundation is a 501(c)3 non-profit corporation (IRS Tax ID# 46-4296623) with a mission to fund potential therapies that will ultimately find a cure for this disorder.  The Foundation is run by volunteers, thus administrative and operating costs are kept to a minimum so that 100% of your contribution goes towards finding a cure.  To donate click here.
We partner with other organizations to achieve our mission.  We are members of the Hunter Syndrome Research Coalition, a group of organizations that seeks to advance research toward a cure for this disorder.  We will coordinate with this Coalition to fund the most promising research program(s) which offer treatment opportunities.

One thought on “Welcome!

    MaryBeth Sisco said:
    December 15, 2013 at 8:12 pm

    My heart has forever been touched by Danny, who has Hunter’s Syndrome and is one of the bravest, sweetest boys I know. His mom, Carolyn, is so amazing and intelligent, and is the epitome of strength and unconditional love.

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