The Hunter Syndrome Foundation aims to fund and find a cure for Hunter Syndrome.Hunter Syndrome or Mucopolysaccharidosis Type II (MPS II) is a rare genetic disorder that slowly destroys the body’s cells. This is a rare condition affecting 1 in 150,000 males. There is currently no cure, and the disease is progressive and life-limiting.
The Hunter Syndrome Foundation is a 501(c)3 non-profit corporation (IRS Tax ID# 46-4296623) with a mission to fund potential therapies that will ultimately find a cure for this disorder. The Foundation was founded in 2013 by parents with children affected by Hunter Syndrome. All administrative and operating costs are kept to a minimum so that 100% of your contribution goes towards finding a cure.
One thought on “Welcome!”
December 15, 2013 at 8:12 pm
My heart has forever been touched by Danny, who has Hunter’s Syndrome and is one of the bravest, sweetest boys I know. His mom, Carolyn, is so amazing and intelligent, and is the epitome of strength and unconditional love.