Related Websites

Below are a few other websites that also are doing their best to inform the public about Hunter Syndrome and MPS disorders, and helping to find/fund a cure:  

MPS SuperHero Foundation
MPS SuperHero Foundation is a South Florida parent-led 501(c)(3) nonprofit organization established in 2016 that is committed to raising funds to cure Hunter Syndrome. 
Phone: 305-283-0250
https://mpssuperhero.org/

Sock-it 2 Hunter Syndrome Foundation
Sock-it 2 Hunter Syndrome is a foundation dedicated to fundraising for research and development towards finding a cure for Hunter Syndrome.
Phone: (929) 274-4236
http://sockit2huntersyndrome.org/

MPS Society
MPS Society provides support to families, supports research and advocates for MPS and related disorders.
Address: P.O. Box 14686
Durham, NC 27709-4686
Toll Free: 877.MPS.1001
Local: 919.806.0101
https://mpssociety.org/

Mayo Clinic
Mayo Clinic contains an abundance of information regarding MPS.
https://www.mayoclinic.org/diseases-conditions/hunter-syndrome/symptoms-causes/syc-20350706

Project Alive
Project Alive is a non profit organization that is dedicated to finding a cure for hunter syndrome through research and advocacy.
Phone: (313) 312-5483
PO Box: 384 Thompson’s Station TN, 37179
https://projectalive.org/

Here’s Jack
Here’s Jack was created by a parent of a Hunter Syndrome patient to share updates, photos, and videos of what’s going on in Jack’s world.  
https://heresjack.com/

Extinguish Hunter Syndrome
Extinguish Hunter Syndrome raises awareness about Hunter Syndrome and the lives that it affects.
Phone: (937)545-1317
http://www.extinguishhuntersyndrome.com/

 

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