Since 2013, the Hunter Syndrome Foundation has worked closely with several other parent-led organizations, such as Project Alive, Help Extinguish Hunter Syndrome, MPSII Research Fund, Caring for Carter, Ryan Our Lion, and Hope 4 Hunter. Together these organizations have supported gene therapy research that is being led by Douglas McCarty, Ph.D., and Haiyan Fu, Ph.D. at Nationwide Children’s Hospital (Columbus, Ohio). TOGETHER the efforts of these organizations have raised over a MILLION dollars to support gene therapy research!!!!
In October 2016, Dr. McCarty noted that “gene therapy for Hunter Syndrome is the result of more than a decade of collaborative research efforts of the research team here at Nationwide and Dr. Joseph Muenzer [of the University of North Carolina, Chapel Hill], with support from patient family foundations. Preclinical data have shown great promise [and] we believe that we are well positioned to move forward towards a Phase 1/2 clinical trial in patients with Hunter Syndrome.”
Researchers and clinicians are ready to bring this potential treatment to Hunter Syndrome patients. We urge everyone to get involved to help raise needed funds to make this a reality. We are all on this journey together and we’d like everyone’s participation. Every penny counts — even a change box at work that raises $50 brings us one step closer. Together we can do this and get a step closer to finding a cure. Please share this information widely. We are a registered 501c3 foundation (IRS Tax ID #46-4296623). Because we are also a small family-run Foundation, we have little administrative costs to 100% of your donations will go towards gene therapy. Contact us for more information about setting up a fundraiser. We appreciate your help!!
For online donations, please click “Donate” button below:
Hunter Syndrome Foundation 
August 26, 2014 at 4:10 pm
This is response to the Ice-Bucket challenge from my niece Deon Michelle Elliott Nelson, what a wonderful niece and beautiful daughter, mother, wife and woman you have grown up to be. Wish my health right now would have let me do the ice-bucket challenge with you. Please accept this donation as fulfillment of your challenge, here is $200,00, $100 for your son Kenny and $100 for your son Ricky. I wish I could do more. I pray they find a cure, and find it soon!!!—Love you all, Uncle Malcolm and Aunt KIm Elliott